Back to work today. The kids are getting excited because Michelle is taking them to Disney this week.
Tyler was feeling sick all day yesterday with a sore throat and Luke developed pink eye last night. Samantha’s back is still probably the scariest thing for us right now. We are trying to hold back on getting DBS for Samantha until she either gets worse or older. We went through a dramatic brain surgery with one of our close friends last Thursday and it was a successful surgery. Dr. Kelly Foote is the man! It reminds me that in many aspects we are lucky to live so close to these incredible doctors. I am not just saying that because I have such a connection with them now but because everyone from all over says that. They are not just brilliant neuro scientists/doctors but genuinely caring and special people.
Our Fourth of July weekend was fun. We went to a couple of parties with the kids. Luke ended up punching a boy for "pushing Tyler down" but it ended up that Tyler just fell. He felt bad but how do you fault a four year old for sticking up for his 11 year old brother. Sammy and I have a date night planed for tonight after we hold a golf tournament meeting.
There is a drug that the Europeans have been trying with some effectiveness lately on dystonia patients that we are going to try Tyler and potentially Sammy on. The drug is called Tetrabenazine.