Our friend that went through the brain surgery to have a tumor removed is doing very well and is quickly recovering. It is amazing what those surgeons can do.

Samantha had a doctor’s appointment since the last time I wrote in the diary and the doctors want her to get Deep Brain stimulation surgery. They verified that the dystonia has shown up in her back and right now is pulling on her right side.  This is very scary for Sammy and for us. They want us to do it during the summer so that we do not need to do it while she is in school. We are going to try the new medication first and attempt to wait at least until next summer when she will be nine and the skull should be done growing.

The kids were at the Nickelodeon hotel this week with their mother and “Memaw” (grandmother). They had a blast because they didn’t need to travel very far to go to the pool or have things to do.   They did go to Universal Studios one day and had a bad experience. They were trying to load Tyler’s electric wheelchair at Universal so they put it into Manual mode and couldn’t get it to work properly. Michelle and the kids took the chair to be repaired and spent half of the day dealing with that.

The golf tournament is sold out again. You cannot beat having good friends and compassionate companies that support a worthy cause. The registry is on the website now and is being updated as I write this. We have interviewed many candidates for the intern positions and will be securing those positions this coming week.

Luke is Luke and is still not showing any signs of dystonia. I am caring for my mother the rest of the week in North Carolina so I am very anxious to see my children and thankful for a wonderful wife.

We will be announcing the grant recipients this coming week including the Dr. Edward V. Staab memorial Grant from the Tyler’s Hope Summit.