The Secret Pal struck again. Each of the kids got stickersand were excited. The Pal just shows up and leaves thingseither by our mailbox or by the front door. You would think we would have accidently bumped into the Pal by now but we have not and the kids love it. Thanks again Pal.

Samantha and I went on date-night last night. She is definietly progressing. It was hard for her to walk evena few steps because all of her muscles are fighting it. I give hera piggy back ride up to the door of a place and then try to hold her up but her back and legs pull. Simple things like playing tik tack toe are very difficult. She now tilts the water glass to her to drink instead of picking it up. She cannot hold a glass like she once could. On the way to dinner she said she wanted to run around and play tennis. I told her a bunch of different things but she knows she cannot do that any more.

Tyler and Luke are doing good. We just paid $2700 for Tyler's shakes. Blue Cross does not cover his shakes but he needs them becaue he would continue to lose weight if he relied on just eating.

The golf tournament is next week. We are oversold with people that want to support the cause. The Registry is going very well and a link to it can be found on the front page. (DIPR or Distonia International Patient Registry)