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Progressional Diary
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Progressional Diary
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Aug 27

Written by: Rick Staab
8/27/2009 

School is in full swing now and each of the kids goes in a different direction since they are all at a different school. I try to take Luke to school while Michelle take Samantha and Tyler in the truck so that she can bring their wheelchairs.

Tyler has been walking so well lately that he was able to take the bus to school yesterday. It is a long work for him but it gives him independence while saviing us time and money. Tyler worked with his aid today and had a good day at school. He has started to go to physical therapy again because his hips are starting to slide up. He puts almost all of his pressure on his right leg when he walks and the left leg is shorter. His physical therapists is trying to stretch his hamstrings and hips instead of having surgery. He is doing well right now.

Samantha is getting worse and is showing more symptoms. She is more uncomfortable at times now. Her back twists and her arms are bad. When we play chess or uno she needs help now. She is getting very pretty and slender as she gets taller. Her dystonia has definetly not affected her ability to talk yet. Like Luke, she has the gift for gab and a great sense of humor.

Luke has been scaring me. Yesterday he fell down four times. I asked him if he was having problems and he said his foot was turning in and he couldn't walk. I believe he has heard his sister say this so much that he copied her but it is scary. Today he seems fine.

We have some great research funded and some great progress with the foundation. We hope to raise millions this year so that we can solve this thing. When we do, I expect a lot of emails saying we were right. Anyone is welcome to saty with us if you are in Gainesville Florida for the best dystonia care and treatment in the world. Very Positive-Rick

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