I went to meet my syblings in NC this weekend to get some closure to my father's house and divide up the heir looms. I was not looking forward to it as many will know or find out that syblings have different agendas and deal with things differently. The weeks leading up to this past weekend made me dread the process. I will say now that it is over, things could not have gone better in my eyes. We had a huge fight early that was worked out and it probably let all of the air out of other fights. Everyone ended up getting the things done that my father would want without fights. It ended up being very good for our relationships which is most important. It was emotional to go through my parents things in order to close the house. My father was a big supporter of Tyler's Hope for a Dystonia Cure and will continue to be through his estate gift to the foundation.

Tyler has been  meeting new friends, getting to know his baseball team better(won both of the double headers this weekend), and reading. I am very proud of his hard work.

Samantha is a little scared right now as well as the rest of us for her. Last night she fell hard three times. The second time was trying to get into her stroller chair. She couldn't get herslf into the chair and fell backwards. She is set to be fast tracked for her deep brain stimulation on September 14th and 15th. Fast track is the evaluation process needed before you can get the surgery.

Luke has been making friends in school as well. His teacher told me he was great last week but he like to talk(this is not shocking to me)

I have met a woman in New Zealand that has dystonia and has a difficult team seeing a doctor that knows about it and can help her. I am going to try to help her(Karen) with the gene test and finding a doctor she can see. She is registering on the DIPR registry and I encourage anyone that has dystonia to sign up by following the link on the front page.