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Progressional Diary
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Progressional Diary
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Progressional Diary
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Nov 4

Written by: Rick Staab
11/4/2011 

Tyler's birthday was two days ago. It is a reminder of the urgency needed in raising money to fund the research. One tear older is one year more that we could have cured him and others. Last night he had five boys sleep over for a party. I am typing this at 5:30 am and they are still not in bed. It sounds as if they have a demolition ball upstairs. Tyler's dystonia has shown up in the left side of his face some. I believe it is the newer programmings but his eye involuntarily closes and he grimaces from time to time. We will try and coorect this.

Samantha had a few days there where her foot was turning in more causing her to fall when she has been trying to walk a lot more. She had a good time and got lots of candy on Halloween.

Luke has started praticing his basketball again. He was a ninja, captain america, and a cowboy this week for Halloween. He broke it down on the dance floor for everyone to see at the Halloween party. Luke loves to dance. Luke turns seven years old on December 1st. This day is important because both Tyler and Samantha showed symptoms when they were seven. Samantha showed the first real signs on her seventh birthday. We are watching very closely at all of his movements but he is showing no symptoms right now.

The secret pal struck again this week. The Pal does not miss a beat. First the Pal showed up for Halloween then again on Tyler's birthday. I know the Pal reads the diary so Thank you Thank you Thank you.

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