Two days before Thanksgiving and there is a lot to be thankful for. For me, family is the top thing followed closely by great friends. I miss my father and my mother but I feel very strong because of the love and strength they gave me while I was growing up. You already know about Saint Michelle and my fantastic kids. My friends I cannot be more grateful for with their compassion for Tyler's Hope and how they make our lives fun.
Now for the update on the kids so that people with dystonia can understand the fluctuation of emotions and daily battles that are fought.
Tyler continues to do very well with his studies and last week he earned 1st place again in the science fair in the botany division with over 350 kids competing and 90 in botany. Tyler will go to the regionals to compete. He will be fitted for a brace/splint for his left wrist and arm soon. He is trying everything he can to get some improvements on his left side. He has had a lot of pulling on his left eye and face lately and it is frustrating and painful at times. He is going to try some different programming settings including turning off and on a lead. Dystonia Sucks!
Samantha continues to impress and work very hard in physical therapy in preparation for her 5k Season of Hope run. Michelle is having some t shirts made up for those of us who are going to run in honor of Samantha at the race. She is going to take a break from her PT after the race is over.
Luke has his 7th birthday December 1st. This has been a date we have been watching very closely because we noticed symptoms with both Tyler and Sam when they turned 7. Samantha showed on her birthday. Right now Luke is doing good and showing no signs of dystonia. He starts basketball on December 5th. Luke has learned how to text so we spend most of our weekends and nights responding to his texts.
Happy Thanksgiving.