We are nearing the end of the school year for the kids. Luke, aka Spiderman gets out this Friday. All three kids seem to being doing very well again and scored very well on their recent FCATs.

Samantha keeps telling me about the annual Tyler Staab award that her school will be giving out this Friday because she is a finalist. Both Samantha and Tyler lose their aides for next year. Tyler's Aid is moving and Samantha's Aid is becoming a teacher. This is scary going into a new year without knowing the Aid. Tyler's Aid is out on vacation the next two weeks so he doesn't have anyone to assist him while preparing for his finals next week.

Tyler went tubing with a couple friends last weekend and had a blast but he worked really hard to stay on the tube because he can only grip with one hand. Any person would have been completely worn out from a day of tubing but he was having so much fun he kept wanting to do more. I find it hard to tell him to stop even though he probably should because he is eating up calories. I don't want him to be able to do what he wants to do but he is still not gaining weight and it doesn't help to burn so many calories with activities like tubing. Of course I could have driven slower but that wasn't an option either.

I received a call today and am meeting with a gentleman tomorrow about having Tyler’s Hope be the charity for the girls World Series softball tournament. This tournament will bring together the champions from eight regions around the United States. They are girls that are 12 and 13 yrs old. It should get a lot of publicity and we will be accepting donations as well as disseminating information about dystonia and our foundation.