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Progressional Diary
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Aug 23

Written by: Rick Staab
8/23/2010 

The 5th annual Tyler’s Hope golf tournament concluded Saturday. Our goal heading into this weekend was to eclipse the $1 million dollar mark for funds raised during the golf tournaments. I am happy to say that we achieved our goal and seem to continue to make progress and generate more support each year.  Several of the new sponsors are going to help in other ways and have promised to do much more. We will cure Dystonia and it will be because of everyone’s genuine support for Tyler’s Hope and desire to help with this devastating disorder. Companies are also supporting our cause by raising awareness through adding the Tyler’s Hope website to their web pages and also email signatures as proud supporters.

The doctors (Foote, Okun, and Rodriguez) brought everyone up to date with the research and progress we have seen from the projects we have funded already. Once again, all of these dollars go towards research for a cure and none of it goes to Tyler or Samantha. We have discovered some potential drug treatments and have started clinical trials, started the DIPR patient registry, and provided needed answers to biological questions surrounding Dystonia all in this past year.

The overall winner of the tournament was Dystonia research but also Gary Klopper, Dale Kinsell, Eric Pace, and Brandon Moore (Corporate Marketing Solutions) took home the flags.

The biggest hit from this year was “Samantha’s Bling”, a table set up where Samantha sold jewelry. I am very proud of Samantha, Tyler, and Luke for how they encourage others, inspire others, and give back towards Dystonia research.

The dates are set for next year’s tournament and it will be held on August 11th-13th, 2011.

Some photos of the event will be placed in the event photos tab on the website in the very near future.

 

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