If you haven't heard it or read it from me, Dystonia Sucks! It is easy to see that dystonia sucks when you are facing it or speaking with someone that is dealing with it but don't forget what these people/kids go through when dealing with dystonia.

Tyler again is doing well in school and recently won the principals writing award this semester. We are still looking into his offer to study in Australia but we are not leaning towards doing it right now. Ty is always playing the video game with the soldier(don't know the name of it which shows how much I like video games). I don't like him spending soo much time on this video game but it is hard to say anything to him when he has straight A's. Tyler's leg has been giving him some pain. It pulls up so when he stands still or lays down it goes up like a flamingo's leg. Tyler refused to get botox for his jaw this last time but he is due for programming of his dbs soon.

Samantha is kicking butt in school also. She is now part of the SCME which is the Science, Mathematics, and Engineering club. She will be doing competitions and yes both of my first two kids are geeks. I am pretty proud of that fact as I was not smart enough for anyone to ever believe I was a geek. Her gardes are fantastic as well. Samantha has had more difficulties with very little results from her DBS. Her neck has recently started giving her troubles. Her feet/ankles are often painful and our worry has been that they became fixed or the bones fused together as they grew. Her recent xrays showed that they have not which is a good thing. She will not get a brace but instead will get serial casted to see if they can get some benefit for her.

Luke won his first football game last night. I was not able to see the game but he said they were awesome. This child is the craziest of the three and never stops. He is a lot of fun and our friends tell us Luke stories all of the time. If I write or speak about hiim I always see the vision of his grin/smile that is very cute but you think he is always up to something.

Keep the faith, we will find a cure.