Progressional Diary

Tuesday October 27th, 2009

by Anonymous on Monday, October 26, 2009 10:00 PM
Tyler had six boys over this weekend for a sleep over. Since Tyler's birthday is Novemeber 2nd they celebrated early with the sleep over and then the next day they went and played paint ball. They had a lot of fun. After staying up all night and playing soo hard, Tyler slept most of Sunday. We checked his batteries on Monday morning because his left side was pulling and uncomfortable and we found that he was turned off. This showed us that although the system isn't perfect, the DBS is working.

Tyler and the six boys came to Michelle and said they all want to do something for Samantha's surgery. They said they want to raise ten thousand dollars in honor of Samantha before her surgery. They said they will all dye their hair pink if they can do it. The coolest thing about them coming up with this idea is that we had nothing to do with it and these kids wanted to do something for Samantha although they give her a hard time all the time. Pretty neat to have an idea to help a charity when you are 12 years old...

Monday October 19th, 2009

by Anonymous on Sunday, October 18, 2009 10:00 PM
Samantha is set for surgery on January 20th and on February 26th, 2010.

Recently there has been coverage in the news media about a woman developing dystonia after receiving a seasonal flu vaccine. Tyler's Hope for a Dystonia Cure is not aware of any information or research showing that the seasonal flu vaccine causes dystonia. As with any medical procedure or treatment option, Tyler's Hope for a Dystonia Cure encourages you to discuss the risks and benefits of getting the seasonal flu vaccine with your doctor. Tyler participated in batting practice this weekend with his team, The Mustangs.  Here is an email I received from his coach today:


Tyler's smile yerterday and the way his teammates rallied behind him were the highlight of the year for me.  We played a stick ball game and we have special lines for the boys to hit past to get a single, next level a double and hitting the fence is a triple.  I also make marks for Tyler. (I told Tyler if he hits the ball to one of the clay areas like...

Friday October 16th, 2009

by Anonymous on Thursday, October 15, 2009 10:00 PM
Yesterday Tyler and I went to the Jacksonville Zoo on a field trip with his class. Tyler was able to go without taking his wheelchair. My group of boys were some of Tyler's good friends so I spent most of the day trying to keep them focused. I was looking at the animals while the boys wanted to ride the merry-go-round or run through the bamboo playground. I got them to at least look at all of the exhibits because I had rented Tyler a wheelchair when we got there and the kids liked riding on it. They would sit on the arms of the chair and on Tyler's Lap. It was a long hot day and Tyler got worn out. When we arrived back in Gainesville, Tyler fell walking to the car. A lot of his fall had to do with his fatigue. He scraped up his knees and elbows on the cement and was embarassed. I carried him to the car after that.

Samantha has a cold but is doing well. Her back and ankles keep her uncomfortable because of the dystonia. Her school work continues to be great and she does some of Tyler's Math problems just...

Monday October 12th, 2009

by Anonymous on Sunday, October 11, 2009 10:00 PM
Tyler had a big weekend of baseball games in a tounrament about an hour north of where we live. The Mustangs ended up losing in many extra innings but played great. Tyler played in both of the first two games. Coach gave Tyler a right handed glove(cannot use his left hand) and he plays in right field. If he gets a ball hit to him he will either take his glove off and throw it in or give the ball to another player near him to throw it in. He really feels like part of the eam now because he gets in and I can see him look over and make sure I am watching him.

Samantha has had a rough week. Her back is pulling a lot more and it is uncomfrotable in just about an position(sitting,standing, or lying down). She rarely complains. She is scared but also ready to have the Deep Brain Surgery in January. We are hopeful that it will give her some relief and more control. She is doing fantastic in school and works hard at it. Tyler and Samantha both have all As in their progress reports.

Luke is still not showing...