Progressional Diary

January 22nd, 2010

by Anonymous on Thursday, January 21, 2010 9:00 PM
The biggest risk is behind us except for infections. Samantha had her brain surgery and did a great job. She didn't cry and was a champ the whole time. I was able to talk to her about half way through the surgery. Dr. Okun called us and said the lead on one side was completed and they were about to do the other side when he handed the phone to Samantha who said hello and that she was doing well. Dr. Okun took a video of her during the surgery to give to Tyler. In the video Sammy said that they found that her brain is bigger.

Everyone feels that the surgery went really well. The location of the leads is right where the doctors want to be and they are optomistic that she will see some improvements. I think this is the best team on the planet for this surgery.

Sam is home now and recovering. She had her head shaved all the way down so we refer to her as GI Jane. In a month they will burrow the wires behind her ears and down to her abdomin where they will implant the batter packs. That surgery will be...

January 14th, 2010

by Anonymous on Wednesday, January 13, 2010 9:00 PM
The time is getting closer for Samantha's surgery. I think Tyler is getting nervous for her. Today she had all of her preoperative work done and tomorrow she will be getting her MRI.  Everyone has been very supportive and believe me we are appreciative of that support. I do not believe that you get used to doing this. It seems like a huge risk every time and we are all a little nervous. I know that our doctors are the best at this and I am not just saying that. I also know that they care about Samantha and our family very much so that helps and I don’t have to threaten anyone. The surgery will be different without my father around because he was always the rock when it came to medical issues.

Samantha went to the Florida Women’s Lacrosse practice on Monday (Jan. 11th). It was awesome. I don’t think she has stopped smiling yet. They made her feel so comfortable and special at the same time. It was very encouraging. The ladies had Sammy do the cheer with them at the end of practice then took her to the locker...

January 11th, 2010

by Anonymous on Sunday, January 10, 2010 9:00 PM
Tyler had a difficult time with his botox injections last week so he was not able to get the ones for hs jaw.

Samantha has been going through all of her prep work for the surgery next week(20th). The surgery (Deep Brain Stimulation) is about an eight to ten hour brain surgery and she needs to be awake during the surgery so that they can tell if they are in the correct location and have her move to see if the pulling can improve. We are all getting a little nervous about the surgery but Samantha wants to hurry up and get it done and try to get some relief. Dr. Kelly Foote and Dr. Michael Okun are the best so we feel it is in their hands to make the good stuff happen to Sammy now. No pressure fellas.

Yesterday we had a hat party for Samantha because she will shave her head a few days before surgery. The party was incredible. Her Godfather and family built a huge hat that the klids jumped out of for her. A lot of her close friends and supporters were there. Mandee O'Leary came and brough Samantha an...

January 3rd, 2010

by Anonymous on Saturday, January 02, 2010 9:00 PM

Happy new year! The kids all had a great Christmas and a fun new year's eve.

The Secret Pal struck again over the Holidays and the kids got gift certificates for Target. Tyler had showed some frugailty one he had to use his own money to purchase games for his game system by not picking games that were too expensive or if he could get the same game that was one year older.

We were able to spend lots of time together with the kids over the break. All of us are getting anxious about the surgery. We have plans to dedicate one million dollars this month to the University of Florida(over the next couple of years) to recruit some researchers we have been talking to in order to create  a successful research team in pursuit of the cure. This year we are being very aggressive and I feel some big things are going to happen in 2010.