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Progressional Diary

August 23rd, 2010 Post Tournament

by Anonymous on Sunday, August 22, 2010 10:00 PM
The 5th annual Tyler’s Hope golf tournament concluded Saturday. Our goal heading into this weekend was to eclipse the $1 million dollar mark for funds raised during the golf tournaments. I am happy to say that we achieved our goal and seem to continue to make progress and generate more support each year.  Several of the new sponsors are going to help in other ways and have promised to do much more. We will cure Dystonia and it will be because of everyone’s genuine support for Tyler’s Hope and desire to help with this devastating disorder. Companies are also supporting our cause by raising awareness through adding the Tyler’s Hope website to their web pages and also email signatures as proud supporters.

The doctors (Foote, Okun, and Rodriguez) brought everyone up to date with the research and progress we have seen from the projects we have funded already. Once again, all of these dollars go towards research for a cure and none of it goes to Tyler or Samantha. We have discovered some potential drug treatments...

August 8th, 2010

by Anonymous on Saturday, August 07, 2010 10:00 PM
I am getting excited about the golf tournament kick off in 11 days. We are completely sold out again and have a waiting list. This shows the support and encouragement that people give when they here about dystonia and ours plans to cure it.Tyler has been doing his summer reading and going to movies with his friends. He swims and went to a party last night for a close friend who is moving to Orlando. His left arm pulls upwards and his jaw has been making it very difficult to eat. We started buying Boost shakes to have in between his high calorie ensure shakes.Samantha has had some fun lately because some friends have come over to play with her and yesterday she went to a friends house and swam. They had a good time. She likes giving people funny make overs but it is very difficult for her because she cannot keep her hands steady. Her back is still twisting and pulling and her feet are still turned in. She has an awesome new haircut that looks great and I think it makes her confident. Luke is doing great and decided...