Progressional Diary

September 29th, 2010

by Anonymous on Tuesday, September 28, 2010 10:00 PM

If you haven't heard it or read it from me, Dystonia Sucks! It is easy to see that dystonia sucks when you are facing it or speaking with someone that is dealing with it but don't forget what these people/kids go through when dealing with dystonia.

Tyler again is doing well in school and recently won the principals writing award this semester. We are still looking into his offer to study in Australia but we are not leaning towards doing it right now. Ty is always playing the video game with the soldier(don't know the name of it which shows how much I like video games). I don't like him spending soo much time on this video game but it is hard to say anything to him when he has straight A's. Tyler's leg has been giving him some pain. It pulls up so when he stands still or lays down it goes up like a flamingo's leg. Tyler refused to get botox for his jaw this last time but he is due for programming of his dbs soon.

Samantha is kicking butt in school also. She is now part of the SCME which is...

September 2nd, 2010

by Anonymous on Wednesday, September 01, 2010 10:00 PM

The kids have all started back to school. Tyler is in 7th grade, Samantha is in 4th grade, and Luke started kindergarten.

Tyler has his first test tomorrow. He is still doing well in school but will need to spend much more time at homework and learning this year. Tyler's AID has not been showing up and I believe is sickly. This has not helped Tyler and Michelle is working to try and get this issue taken care of. The school recieves money for the Aids and the position has not been properly filled yet. Tyler was invited to study in Australia on some kind of presidential scholarship. It is a great opportunity but poses other risks and obsticales because of the Dystonia. Any easy solution will be to have me go with him.

Samantha has had some emotional issues with all of the pain and dealing with the Dystonia. She sarted seeing a Phsycologist last week and she seems to like it. She is being fitted for an AFO which is a fancy accronim for something that means a brace. The brace will hopefully straighten her foot. She was very excited to walk a short distance last night after having her foot stretched. She was showing off. It really was awesome to see her so excited so my new goal is to get her walking some even if it is short distances. WE hope the brace will help. Samantha's Aid is good.