We held the first Dystonia International Patient Registry webinar this past week and it went very well. More people have signed up for the registry and are getting the word out about its importance. It was recorded so we should be able to share it in the near future.
The "Season of Hope" Run will be held on December 11th and it will benefit the Tyler's Hope center at UF. There will be a 5k and a 15k run. I will post more information on the calendar soon. The courses have been layed out and measured and it is now on active.com
Luke is alread in a k-1 split working at a first grade level. Luke has been learning to sound words out and has read three books tonight by sounding out all of the words. He really is starting to excel in his learning and it is fun to watch.
Samantha continues to have some difficulties with her dystonia and has not made much progress with her feet. She went to get reprogrammed last week. She is still waiting to start her serial casting but it was delayed due to a change...