Progressional Diary

September 21st, 2011

by Anonymous on Tuesday, September 20, 2011 10:00 PM
A quick update and a good story.

Tyler's left foot is looser and is causing him to fall when he walks. The docs say it is a good sign to have that foot loosen up but Tyler has to work on building the muscles. He fell down the steps coming down the stairs this morning.

Samantha's foot has truned a little so she will need to try and tweak her settings so that it straightens out some more again. Her and Tyler go to therapy every week with Tyler going to both phyiscal and occupational therapy.

Luke is reading much better now and is adding using three digit numbers. Samantha works him hard asking math questions all of the time.

The good story: I am going to copy it at my office.

Gray/Robinson Attorneys at Law in Orlando sent a letter describing a unique way to raise money for Tyler's Hope.

Our firm supports"Casual Day for a Cause" on each payday friday. Each employee who wishes to participate contributes a minimum of $5 for the opportunity to dress professionally casual. The...

September 8th, 2011

by Anonymous on Wednesday, September 07, 2011 10:00 PM

It has been a hectic week but a very good one by our standards. The kids have been working hard in school. Tyler has all perfect grades and is concerning me over our bet about Harvard. Samantha is doing equally as well in school and Luke tested out as gifted. I must clarify that gifted means at his age that he is creative with his ability to learn not his knowledge. I would never say that boy is not creative so I can understand why he tested very high.

Tyler just called me on the phone with fantastic news. After more than three years of no wieght gain he has put on three ibs since his last visit. This is huge. I couldn't be happier because this has been my largest worry with him. I hope it continues but right now it is a huge step in the right direction. Tyler's face has more dystonia because of his new DBS settings. He is able to pronounce things better than he could before but there are other symptoms presenting on the left side of his face.

Samantha called me yesterday and explained that...