Progressional Diary

October 18th, 2011 -The Wedding

by Anonymous on Monday, October 17, 2011 10:00 PM
We were able to take all three kids with us this past weekend to Boston and Newport RI. 

As a reminder for those who do not have handicapped children or are newly diagnosed, airports and airplanes are not the easiest things to navigate with Dystonia. As always Saint Michelle called ahead and got some wheelchairs reserved for the airports and that helps. You cannot use the escalators or stairs with wheelchairs. Our layover in Atlanta was 35 minutes and we had to travel between terminals so waiting on the elevators is frustrating. We did make our connecting flight though. Both Tyler and Samantha have adjusted to the posturing that dystonia makes them take so they were able to comfortably fly to our destination. The last trip we were on, sitting still in the seats was an issue because of all of the dystonic movements. Because of the extra luggage, and walker (we left one of the wheelchairs at home) we needed to rent an SUV to carry everyone around. Samantha started with a head cold and came home with what is now bronchitis.


October 4th, 2011

by Anonymous on Monday, October 03, 2011 10:00 PM

Tyler's Hope is proud to be a part of the 2011 Gators Give Program.

Pleadge on line and learn more about the 2011 UFCC Campaign at

The UFCC is the only official charitable giving drive for UF employees. Contributing to the UFCC is voluntary and can be done through cash, check, direct bill, or payroll deduction.

Both Tyler and Samantha were selected for international travel thorugh there schools. Tyler was also selected this week for a leadership program that would focus on Medicine and Science, Politics, and leadership. These programs are held over the summer at Harvard, Columbia, Georgetown, UCLA and Stanford.

Samantha has plans to walk the 5k with her brother Tyler in the Season of Hope race on December 10th, 2011. Samantha successfully completed the Heart walk 5k last weekend and we are all very proud of her accomplishment and will power.