Progressional Diary

January 7th, 2012

by Anonymous on Friday, January 06, 2012 9:00 PM
Our household is very interesting right now. The kids continue to do well in school but we are attempting to get better results from Tyler and Samantha’s DBS surgeries by modifying their programming.

Tyler's left arm continues to be a problem and he has some facial dystonia with some pulling and some in his eyes. The very good sign is that Tyler seems to be putting on some weight. Through a combination of increased shakes and increased appetite which allows him to eat more during the daytime, he has had some weight gains. Unfortunately two days ago Tyler started having some cognitive issues at school with some loss of memory. When he came home we noticed that he had something that looked like an infection on top of his head and it was very sensitive. Michelle took Tyler into the hospital where the docs met them and agreed to get a CT scan done right away. The CT look good because there was no evidence of infection in the brain but there is an infection near the cap that holds the electrode onto the skull....