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Progressional Diary

February 25th, 2012

by Anonymous on Friday, February 24, 2012 9:00 PM
Today I had a UF foundation board of directors meeting and was given the opportunity to share the story about Tyler's Hope and dystonia. I am encourged whenever I find people that are not aware of dystonia. Awareness is huge in the fight to find a cure. With more awareness there is more researchers and doctors available for the fight as well as better diagnosis. There is so much to tell and share about the foundation but this diary wa sdesigned to tell the struggles and accomplishments of my children and our family. I hear from peopl all of the time when it is not updated.

Saint Michelle and I celebrated 17 years of marriage recently. I love my wife very much but I feel a sense of accomplishment or pride in being married for 17 years and dealing with some crazy things together during that time.

Tyler has a few very good friends that make his life easier. Tyler gets discouraged sometimes trying to find things that he can do wth his friends and to get him out of the house. Tyler's left arm i still one of his largest problems with it constantly pulling and standing straight up in the air. His speach is not good and hard to understand and I can tell that he gets frustrated when we cannot understand him. I imagine it is like having your son on the other side of a class wall where you cannot hear him but want to discuss things all of the time. Tyler currently has a 5.0 gpa on a 4.0 scale. He just received his letter of acceptance to the high school program of his choice and it made all of us very happy. He got into all of the programs he wanted to.

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February 1st, 2012

by Anonymous on Tuesday, January 31, 2012 9:00 PM
Report cards came out and Tyler, Luke, and Samantha have straight As in school.

Tyler is recovering well from his surgery and appears to be infection free. Tomorrow he has the regional science fair at Santa Fe College. He is in the botany division. His dystonia is still bad with his left arm continuously pulling up into the air. The docs are trying hard to find a setting that can help this but have not found it yet. He is applying to different high schools next year and waiting for his acceptance letters.

Samantha is applying to middle schools and waiting for her letters. She now has a new ambition  of playing middle school volleyball. Anyone else I would have thought this would be impossible but with Samantha I believe she can do it. She has started to train with Merideth again and is excited about having the new goal. Her feet still trun some and her core isnt as strong as before but we are hoping to find her optimal programming also.

Luke is doing well in basketball and loves a new electric...