Tyler's Hope for a Dystonia Cure
  • Tyler's Story
    • Progressional Diary
  • About Us
    • Centers of Excellence >
      • University of Florida's Norman Fixel Institute for Neurological Diseases
      • Duke Health
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    • The Research
    • Our Leadership
    • Media Coverage
  • Events
    • Center of Excellence at Duke Health Ribbon Cutting
    • Cajun Crawfish Boil
    • Think Tank
    • The Hope Weekend
    • Season of Hope 5K/15K
    • Webinars
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    • Shop
    • The Hope Brew Coffee
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    • Send checks
    • Amazon Smile
    • Giving Tuesday
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    • Donate Now
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Samantha takes on Dystonia Awareness Month

10/2/2017

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The Month of September was Dystonia Awareness month and I was very proud of our daughter Samantha for introducing this and promoting it at her high school, Oak Hall. Samantha did everything on her own. I didn’t realize all she was trying to do for our foundation and to create awareness until she was done. I love when my kids get very involved in Tyler’s Hope and what we are trying to accomplish because they know and see the difference it makes. Samantha sold over $600 worth of t-shits and socks and Luke sold a few pairs of socks to his lacrosse friends. Many of Samantha’s schoolmates now participate in Tyler’s Hope Tuesdays by wearing their shirts and taking pictures for social media. Tyler, Samantha, and Luke approach the fight with dystonia and funding the cure with great strength and grace and we are very proud of them.
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Location:
13301 US Hwy 441
Alachua, FL 32615
​
(Located inside The InterMed Group's Corporate Office)

Mission Statement

Tyler's Hope Foundation was established to advance research for a cure, discover effective treatments and to promote awareness and education of DYT1 Dystonia. 

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​501c3    20-3733312



Contact Us

  • Tyler's Story
    • Progressional Diary
  • About Us
    • Centers of Excellence >
      • University of Florida's Norman Fixel Institute for Neurological Diseases
      • Duke Health
    • About Dystonia
    • Meet the Team
    • The Research
    • Our Leadership
    • Media Coverage
  • Events
    • Center of Excellence at Duke Health Ribbon Cutting
    • Cajun Crawfish Boil
    • Think Tank
    • The Hope Weekend
    • Season of Hope 5K/15K
    • Webinars
  • Support Us
    • Shop
    • The Hope Brew Coffee
    • Planned Giving
    • Send checks
    • Amazon Smile
    • Giving Tuesday
  • Get Involved
    • Donate Now
    • Add a Signature
    • Volunteer Registration
    • Tyler's Hope Tuesdays
    • Social Media >
      • Facebook
      • Twitter
      • Instagram
  • Latest News
  • DIPR - Dystonia International Patient Registry
  • Blog