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Dystonia is a neurological movement disorder characterized by involuntary muscle contractions, which force certain parts of the body into abnormal, sometimes painful, movements or postures. Dystonia can affect any part of the body including the arms and legs, trunk, neck, eyelids, face, or vocal cords.

From Kitchen to Cure!

Progressive Diary October 2nd, 2016

By Rick Staab

On Friday September 30th Samantha had surgery to replace a battery for her DBS that was failing and weak. We are hopeful that with the battery replaced she will have more mobility. Samantha was tripping and having more difficulty walking leading up to the surgery. The surgery went well other than the common problem she has of not being able to get a good IV started. She will be healing up this week but able to go to school and do most of her normal activities.

Tyler started college at Santa Fe and is taking a few classes this semester to get acclimated. Tyler also works for the InterMed Group during the week entering data in the service database. Tyler has been producing some fun videos for his interest in cars and some of the auto shows.

Luke continues to try to heal a bad lession on his knee and was given another six weeks of no pressure then they will re-evaluate his knee and hopefully clear him for rehab. Luke is doing well in school and works hard to keep his grades up.

Tyler's Hope Events

Dystonia International Patient Registry
Thank you to our Tyler's Hope 10 for 10 Participants
  • Governor Jeb Bush
  • Rick and Michelle Staab
  • InterMed
  • Scarborough Insurance
  • Front Street Commercial Real Estate Group
  • UF Health
  • Florida Farm Bureau
  • MD Publishing
  • A+ Medical
  • WaffleHouse
  • Endoscopy Replacement parts, LLC
  • SunTrust
  • Scherer Construction
  • Koss - Olinger Financial Group
  • Crime Prevention Security Systems and Custom Home Entertainment
  • Advantage Publishing
  • Dr. Brian Poplin
  • Brian and Amber Crawford
  • FIGG