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Dystonia is a neurological movement disorder characterized by involuntary muscle contractions, which force certain parts of the body into abnormal, sometimes painful, movements or postures. Dystonia can affect any part of the body including the arms and legs, trunk, neck, eyelids, face, or vocal cords.

From Kitchen to Cure!

Spotlight of Hope

Thank you to our Tyler's Hope 10 for 10 Participants
  • Governor Jeb Bush
  • Rick and Michelle Staab
  • InterMed
  • Scarborough Insurance
  • Front Street Commercial Real Estate Group
  • UF Health
  • Florida Farm Bureau
  • MD Publishing
  • A+ Medical
  • WaffleHouse
  • Endoscopy Replacement Parts, LLC
  • SunTrust
  • Scherer Construction
  • Koss - Olinger Financial Group
  • Crime Prevention Security Systems and Custom Home Entertainment.
  • Advantage Publishing 
  • Dr Brian Poplin
Dystonia International Patient Registry

Progressive Diary March 23rd, 2015

By Rick Staab

Sometimes things start to align and we push forward at an accelerated pace.

We are in the final steps of our Alignment grant which is funding a new collaboration of great universities and researchers with a potential huge outcome. The groups have demonstrated success in a new pathway towards treatments and a cure and have received additional confidence in their findings through the NIH.

The Tyler's Hope 10 for 10 program has been launched and one of the first people to participate is a great supporter of the Tyler's Hope foundation, Florida governor and future presidential hopeful, Jeb Bush. Both his financial and intellectual support are making a difference and will continue to push towards a cure for dystonia.

Beating Dystonia Daily:

Tyler has straight As in school and is in four honors courses. Samantha always has straight As. They work very hard through some of the debilitating symptoms toward their honor roles at school and of course we are very proud of them. Luke does well in school and continues to play lots of lacrosse and some basketball. He is an awesome athlete and has a motor that doesn't quit. No surgeries or new developments to report but that isn't to say they do not constantly battle the bully we know as dystonia every day and night.

Photo Contest

Tyler's hope photo contest

Tyler’s hope is asking supporters to show us how and where you have spread awareness! - Read more about the photo contest

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