Tyler's Hope for a Dystonia Cure
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Great Man and Ambassador

1/4/2015

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When we started this war on Dystonia, we knew that passion and emotion would play a huge role in our momentum, and that our ultimate victory would include challenges and heartbreak on the path to the finish. Tyler's Hope has become a force in the quest for a cure, our confidence is high and we should all be intensely proud to be pushing Dystonia into a corner.  But is with a very heavy heart that I share with you the loss of one of our most promising warriors. Don Beardsley, Tyler's Hope Ambassador, husband, father, entrepreneur, and fearless friend, passed away Saturday after a massive heart attack. None of us were prepared for his loss. 

Don was introduced to Tyler's Hope by my brother Ken at a bar (big surprise) after a golf tournament in Miami a few years ago. After hearing the details, and seeing pictures on the website, Don broke down into tears and made a vow to be a part of the solution. He had no connections to the disorder, just a huge heart and the recognition that his kids...
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Location:
13301 US Hwy 441
Alachua, FL 32615
​
(Located inside The InterMed Group's Corporate Office)

Mission Statement

Tyler's Hope Foundation was established to advance research for a cure, discover effective treatments and to promote awareness and education of DYT1 Dystonia. 

​
​501c3    20-3733312



Contact Us

  • Tyler's Story
    • Progressional Diary
  • About Us
    • Centers of Excellence >
      • University of Florida's Norman Fixel Institute for Neurological Diseases
      • Duke Health
    • About Dystonia
    • Meet the Team
    • The Research
    • Our Leadership
    • Media Coverage
  • Events
    • Center of Excellence at Duke Health Ribbon Cutting
    • Cajun Crawfish Boil
    • Think Tank
    • The Hope Weekend
    • Season of Hope 5K/15K
    • Webinars
  • Support Us
    • Shop
    • The Hope Brew Coffee
    • Planned Giving
    • Send checks
    • Amazon Smile
    • Giving Tuesday
  • Get Involved
    • Donate Now
    • Add a Signature
    • Volunteer Registration
    • Tyler's Hope Tuesdays
    • Social Media >
      • Facebook
      • Twitter
      • Instagram
  • Latest News
  • DIPR - Dystonia International Patient Registry
  • Blog