Tyler's Hope for a Dystonia Cure
  • Tyler's Story
    • Progressional Diary
  • About Us
    • Centers of Excellence >
      • University of Florida's Norman Fixel Institute for Neurological Diseases
      • Duke Health
    • About Dystonia
    • Meet the Team
    • The Research
    • Our Leadership
    • Media Coverage
  • Events
    • Center of Excellence at Duke Health Ribbon Cutting
    • Cajun Crawfish Boil
    • Think Tank
    • The Hope Weekend
    • Season of Hope 5K/15K
    • Webinars
  • Support Us
    • Year End Giving
    • Planned Giving
    • Send checks
    • Benefactor Society
    • Giving Tuesday
  • Board Member Portal
  • Get Involved
    • Donate Now
    • Add a Signature
    • Volunteer Registration
    • Tyler's Hope Tuesdays
    • Social Media >
      • Facebook
      • Twitter
      • Instagram
  • Latest News
  • DIPR - Dystonia International Patient Registry
  • Blog
  • Product

Our Mission

About Tyler’s Hope for a Dystonia Cure
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Founded in 2006, Tyler’s Hope for a Dystonia Cure is dedicated to raising awareness, advancing research, and accelerating the discovery of effective treatments for dystonia.
Dystonia is a neurological movement disorder that causes involuntary muscle contractions, forcing parts of the body into abnormal, often painful, movements and postures. It can affect any area, including the arms, legs, trunk, neck, eyelids, face, or vocal cords. While dystonia does not impact cognitive function, strength, or sensory perception, it can impair speech and significantly affect quality of life. Though not fatal, it is a chronic condition with an unpredictable prognosis.
Dystonia is the third most common movement disorder, following Parkinson’s disease and essential tremor. It affects people of all ages, races, and ethnic backgrounds—one-third of those diagnosed are children. In fact, dystonia impacts more individuals than Muscular Dystrophy, Huntington’s Disease, and Lou Gehrig’s Disease combined.
Tyler’s Hope is committed to ensuring that no other child endures the same challenges that Tyler and Samantha faced on their journey to a diagnosis. Through advocacy, education, and research, we strive to bring hope and a cure within reach.
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Upcoming Event
Dystonia Think Tank 
May 9th 2025 in Gainesville, FL at UF Health Shands

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Thank you to all our amazing Sponsors and Volunteer that helped us make this years Crawfish Boil a Great Success!

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Tyler's Hope Support

Tyler's Hope
​in the community

SAVE THE DATE

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Become a Member

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To volunteer for specific events, please visit our events page.

    Volunteer

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Get in Touch With Us to Learn More About Dystonia

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Location:
13301 US Hwy 441
Alachua, FL 32615
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(Located inside The InterMed Group's Corporate Office)

Mission Statement

Tyler's Hope Foundation was established to advance research for a cure, discover effective treatments and to promote awareness and education of DYT1 Dystonia. 

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​501c3    20-3733312



Contact Us

  • Tyler's Story
    • Progressional Diary
  • About Us
    • Centers of Excellence >
      • University of Florida's Norman Fixel Institute for Neurological Diseases
      • Duke Health
    • About Dystonia
    • Meet the Team
    • The Research
    • Our Leadership
    • Media Coverage
  • Events
    • Center of Excellence at Duke Health Ribbon Cutting
    • Cajun Crawfish Boil
    • Think Tank
    • The Hope Weekend
    • Season of Hope 5K/15K
    • Webinars
  • Support Us
    • Year End Giving
    • Planned Giving
    • Send checks
    • Benefactor Society
    • Giving Tuesday
  • Board Member Portal
  • Get Involved
    • Donate Now
    • Add a Signature
    • Volunteer Registration
    • Tyler's Hope Tuesdays
    • Social Media >
      • Facebook
      • Twitter
      • Instagram
  • Latest News
  • DIPR - Dystonia International Patient Registry
  • Blog
  • Product