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Gator’s for Hope – Raffle.

Chance to win – 2 Box tickets to a Gator Game, a Yeti cooler, a margarita machine, signed gator gear, and a Tyler’s Hope swag bag.

$6 for 1 ticket, $10 for 2.

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Lets Find a Cure!

Dystonia is a neurological movement disorder characterized by involuntary muscle contractions, which force certain parts of the body into abnormal, sometimes painful, movements or postures. Dystonia can affect any part of the body including the arms and legs, trunk, neck, eyelids, face, or vocal cords.

From Kitchen to Cure!

Spotlight of Hope

ULTRA RAGNAR RELAY TEAM

GlobalHR Research

We want to highlight the Rangar Ultra Relay Team for Tyler's Hope!

For those of you who do not know about The Ragnar Relay Race, it is a 200 mile relay race that takes place in different states around the USA.  Traditionally a race consists of 12 runners who alternate runnning "legs" of the race, while the runners waiting for their "leg" follow along in a van until it is there turn to run again. The ULTRA teams consist of only 6 people so each runner will run Double the amount distance of a traditional team. 

In 2015 six supporters of Tyler's Hope including the Founder Rick Staab will run an ULTRA Team in the Florida Keys. They are running this race to do something that one could not normally do for those who cannot.  Not only are they doing this amazing feat to raise awareness of Dystonia but they are also raising money for Tyler's Hope for a Dystonia Cure.  Please take a moment and sponsor this incredible team on crowdrise.  All the money raised will go directly to Tyler Hope and as always that money will go directly to funding cutting edge research to Cure Dystonia!.

Please Use this link to Check out there Crowdrise Team and to give a donation. https://www.crowdrise.com/syncd4o/fundraiser/richardstaab/1/return/success/success

You can also check them out on Facebook and learn more about the runners and follow there journey as they push themselves past their limits!  https://www.facebook.com/pages/Ragnar-Ultra-Relay-Team-for-Tylers-Hope/376116745803397

We wish their team the best of luck and God Speed!

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Dystonia International Patient Registry

Progressive Diary January 4th, 2015

By Rick Staab:

When we started this war on Dystonia, we knew that passion and emotion would play a huge role in our momentum, and that our ultimate victory would include challenges and heartbreak on the path to the finish. Tyler's Hope has become a force in the quest for a cure, our confidence is high and we should all be intensely proud to be pushing Dystonia into a corner.  But is with a very heavy heart that I share with you the loss of one of our most promising warriors. Don Beardsley, Tyler's Hope Ambassador, husband, father, entrepreneur, and fearless friend, passed away Saturday after a massive heart attack. None of us were prepared for his loss.

Don was introduced to Tyler's Hope by my brother Ken at a bar (big surprise) after a golf tournament in Miami a few years ago. After hearing the details, and seeing pictures on the website, Don broke down into tears and made a vow to be a part of the solution. He had no connections to the disorder, just a huge heart and the recognition that his kids were healthy and his life pretty damn good. He quickly became a large donor and one of our most active recruiters. He accepted the role of Ambassador of Hope, and had laid plans with my brother to target the larger foundations and businesses that they both knew were capable of adding significantly to our efforts.

Although it came without any warning, I take great comfort in the timing of recent events in Don's life. In early 2014, he sold his company to a major player, then spent the next several months focusing on "the real things" as he would say. He spent most of his time with his amazing wife Sue and his kids, attended every ball game and social event that they allowed him to attend, worked on his "honey do" list from hell, and visited with friends and partners on a level that we all hope for, but rarely allocate the time.

I am very fortunate to have a lot of great people around me, and Don was one of the brightest. His energy was kinetic, and he had a unique way of weaving his morals into action while making everything he touched fun and memorable. He adored and was every proud of his kids and wanted to help others be able to have the exact same opportunities in their lives.

Don defined noble, and his unselfish approach to our mission at Tyler's Hope ignited a contagious sense of passion and goodness in everyone he touched. The Ambassador program will grow into something huge, and Don's role in the genesis of that momentum will never fade.  I am certain that we have at least four spirits in heaven smiling down (Ed Staab, Rick Steenbruggen, Teddy Seagroves and Don Beardsley) because they know the cure is coming, will help us be patient with bureaucracies, and will give us the strength to do the things that change our world while enjoying what we do. 

Peace my friend. 

Rick 

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