Progressive Diary September 11th, 2014
By Rick Staab:
It would not be right if I did not mention the tragedy of 9-11 on this day. I will say prayers for those tragically lost on 9-11.
The kids are doing well and each have their challenges that are different from one another. It is aggravating that we have not found a cure yet but we are determined to make this happen. The kids (and adults) that deal with dystonia every day need people to fight for the cure until we find it. They deal with disabilities and pain that you cannot imagine unless you see it every day and unfortunately even then we don't understand everything they deal with.
My kids are strong individuals and I feel they are stronger than most others but it is a shame that they have to constantly battle a disorder that robs them of their abilities that they used to have. They have this mutant protein that evidently does more function/corruption than the non-mutant form they produce. They want the same things that every kid wants in being attractive, physical, popular, and self-sustaining(independent).
Tyler is re-motivated this year in school and although it is early he has all As. I told him I would pay the remaining amount he owes for his truck if he got straight As. I probably should not have bet him but it will be worth it. Tyler has done some very nice things with videos for the family and for promoting Facebook posts.
Samantha plays volleyball all of the time. I think she plays every day of the week and loves it but is continuously frustrated with her lack of mobility. She continues to make excellent grades and I enjoy helping her with her Spanish this year.
Luke is now going to a new school and is challenged academically a little more but receiving some guidance with his dyslexia. He works hard and enjoys everything he does both athletically and in school. He is pretty fun to be around when we see him. He continues to show no signs of dystonia.
PLEASE REMEMBER THAT SEPTEMBER IS DYSTONIA AWARENESS MONTH AND ORANGE IS THE COLOR FOR DYSTONIA AWARENESS