Tyler's Hope for a Dystonia Cure
  • Tyler's Story
    • Progressional Diary
  • About Us
    • Centers of Excellence >
      • University of Florida's Norman Fixel Institute for Neurological Diseases
      • Duke Health
    • About Dystonia
    • Meet the Team
    • The Research
    • Our Leadership
    • Media Coverage
  • Events
    • Center of Excellence at Duke Health Ribbon Cutting
    • Cajun Crawfish Boil
    • Think Tank
    • The Hope Weekend
    • Season of Hope 5K/15K
    • Webinars
  • Support Us
    • Shop
    • The Hope Brew Coffee
    • Planned Giving
    • Send checks
    • Amazon Smile
    • Giving Tuesday
  • Get Involved
    • Donate Now
    • Add a Signature
    • Volunteer Registration
    • Tyler's Hope Tuesdays
    • Social Media >
      • Facebook
      • Twitter
      • Instagram
  • Latest News
  • DIPR - Dystonia International Patient Registry
  • Blog

Duke Health

Comprehensive Dystonia Care at Duke Health

In 2022, Tyler's Hope for a Dystonia Cure Foundation designated Duke Health as a Center of Excellence for dystonia. This designation recognizes Duke’s excellence in dystonia care, research and education and provides support to accelerate and amplify our impact for people with dystonia. 
Mission

To provide excellence interdisciplinary approach that draws upon the best in lifestyle, medical, physical and surgical therapies. To accelerate research that will help discover new treatments, and ultimately a cure for dystonia. To increase education and awareness about dystonia.
​Care
At Duke, people with dystonia have access to a team of interdisciplinary care providers that are skilled and knowledgeable in dystonia. Providers from many disciplines including neurology, neurosurgery, ophthalmology, ENT, physical therapy, occupational therapy, speech therapy, social work and psychology are available to meet your individual needs.
​Better Solutions
Researchers at Duke are looking for solutions to the problems of dystonia by drawing on many fields and technologies. Our scientists aim to uncover the causes of dystonia, to develop new drugs targeting dystonia core mechanisms, and to improve the use of neuromodulation therapies like deep brain stimulation (DBS) and transcranial magnetic stimulation (TMS). Opportunities to participate in clinical research can be found here Clinical Trials | Duke Department of Neurology  or by contacting our research coordinator at movdisres@duke.edu.
​Education and outreach
Through conferences, webinars, peer-led support groups and training programs, we increase awareness and knowledge about dystonia to reduce time to accurate diagnosis, increase access to the best treatments, and inspire the next generation of clinicians and researchers to contribute to this important problem. 
​New Patient Information
New patients can contact the Duke Health scheduling hub at (919) 668-7600 or our Tyler's Hope Center of Excellence administrative assistant at (919) 684-4152 for an evaluation by a neurologist in the Tyler's Hope Center of Excellence clinic at 932 Morreene Road. Movement Disorders | Duke Health

To best prepare for your evaluation, please contact your current physician for a referral. This can be your family physician, internal medicine physician, neurologist, or any physician who feels you may have a movement disorder. Please ask your doctor’s office to fax (919) 681-4935. This referral should include all your demographic information, as well as copies of your insurance card(s) and the most-recent 3-5 clinic notes from your neurologist. You can also call the
Tyler's Hope Center of Excellence scheduling assistant at (919) 684-4152 for more information on this process.

Location:
13301 US Hwy 441
Alachua, FL 32615
​
(Located inside The InterMed Group's Corporate Office)

Mission Statement

Tyler's Hope Foundation was established to advance research for a cure, discover effective treatments and to promote awareness and education of DYT1 Dystonia. 

​
​501c3    20-3733312



Contact Us

  • Tyler's Story
    • Progressional Diary
  • About Us
    • Centers of Excellence >
      • University of Florida's Norman Fixel Institute for Neurological Diseases
      • Duke Health
    • About Dystonia
    • Meet the Team
    • The Research
    • Our Leadership
    • Media Coverage
  • Events
    • Center of Excellence at Duke Health Ribbon Cutting
    • Cajun Crawfish Boil
    • Think Tank
    • The Hope Weekend
    • Season of Hope 5K/15K
    • Webinars
  • Support Us
    • Shop
    • The Hope Brew Coffee
    • Planned Giving
    • Send checks
    • Amazon Smile
    • Giving Tuesday
  • Get Involved
    • Donate Now
    • Add a Signature
    • Volunteer Registration
    • Tyler's Hope Tuesdays
    • Social Media >
      • Facebook
      • Twitter
      • Instagram
  • Latest News
  • DIPR - Dystonia International Patient Registry
  • Blog