Tyler's Hope for a Dystonia Cure
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Samantha Surgery and update

10/2/2016

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On Friday September 30th Samantha had surgery to replace a battery for her DBS that was failing and weak. We are hopeful  that with the battery replaced she will have more mobility. Samantha was tripping and having more difficulty walking leading up to the surgery. The surgery went well other than the common problem she has of not being able to get a good IV started. She will be healing up this week but able to go to school and do most of her normal activities.

​Tyler started college at Santa Fe and is taking a few casses this semester to get acclimated. Tyler also works for the InterMed Group during the week entering data in the service database. Tyler has been producing some fun videos for his interest in cars and some of the audo shows. 
Luke continues to try to heel a bad lession on his knee and was given another six weeks of no pressure then they will re-evaluate his knee and hopefully clear him for rehab. Luke is doing wellin school and works hard to keep his grades up.
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Location:
13301 US Hwy 441
Alachua, FL 32615
​
(Located inside The InterMed Group's Corporate Office)

Mission Statement

Tyler's Hope Foundation was established to advance research for a cure, discover effective treatments and to promote awareness and education of DYT1 Dystonia. 

​
​501c3    20-3733312



Contact Us

  • Tyler's Story
    • Progressional Diary
  • About Us
    • Centers of Excellence >
      • University of Florida's Norman Fixel Institute for Neurological Diseases
      • Duke Health
    • About Dystonia
    • Meet the Team
    • The Research
    • Our Leadership
    • Media Coverage
  • Events
    • Center of Excellence at Duke Health Ribbon Cutting
    • Cajun Crawfish Boil
    • Think Tank
    • The Hope Weekend
    • Season of Hope 5K/15K
    • Webinars
  • Support Us
    • Year End Giving
    • Planned Giving
    • Send checks
    • Benefactor Society
    • Giving Tuesday
  • Board Member Portal
  • Get Involved
    • Donate Now
    • Add a Signature
    • Volunteer Registration
    • Tyler's Hope Tuesdays
    • Social Media >
      • Facebook
      • Twitter
      • Instagram
  • Latest News
  • DIPR - Dystonia International Patient Registry
  • Blog
  • Product