Tyler's Hope for a Dystonia Cure
  • Tyler's Story
    • Progressional Diary
  • About Us
    • Centers of Excellence >
      • University of Florida's Norman Fixel Institute for Neurological Diseases
      • Duke Health
    • About Dystonia
    • Meet the Team
    • The Research
    • Our Leadership
    • Media Coverage
  • Events
    • Cajun Crawfish Boil
    • Think Tank
    • The Hope Weekend
    • Season of Hope 5K/15K
    • Webinars
  • Support Us
    • Shop
    • The Hope Brew Coffee
    • Planned Giving
    • Send checks
    • Amazon Smile
    • Giving Tuesday
  • Get Involved
    • Donate Now
    • Add a Signature
    • Volunteer Registration
    • Tyler's Hope Tuesdays
    • Social Media >
      • Facebook
      • Twitter
      • Instagram
  • Latest News
  • DIPR - Dystonia International Patient Registry
  • Blog

The Blog

Periodical posts to update you on the most important topics concerning Tyler's Hope events, fundraisers,

​and dystonia awareness.

Dystonia: The Breakdown

5/31/2017

1010 Comments

 
What exactly is Dystonia? 

Let me break it down. Dystonia is a neurological movement disorder characterized by involuntary muscle contractions, which force certain parts of the body into abnormal, sometimes painful, movements or postures. Dystonia can affect any part of the body including the arms and legs, trunk, neck, eyelids, face, or vocal cords.
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Dystonia is not fatal, but is a chronic disorder with often unpredictable prognoses. Dystonia is the third most common movement disorder after Parkinson’s Disease and Tremor. Dystonia does not discriminate: it affects people of every race and ethnic group and one-third of Dystonia patients are children. Dystonia affects more people than Muscular Dystrophy, Huntington’s Disease and Lou Gehrig’s Disease combined. 

Research has shown that there is a cure for this neurological movement disorder but the cure has not been found...yet. With donations, volunteer, and word of mouth, Dystonia can be cured much faster. 

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1010 Comments

The New Website

5/17/2017

1 Comment

 
The team at Tyler's Hope is very excited for the new website that will be representing the foundation. With new images, features, and upgrades, the new website is sure to impress. Please let us know what you think about it! Follow 'Tyler's Hope for a Dystonia Cure' on  all social media platforms (easy 'click' on icons in the footer) to show your support. We look forward to your generosity and kindness. 

-The Tyler's Hope team
1 Comment

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Location:
13301 US Hwy 441
Alachua, FL 32615
​
(Located inside The InterMed Group's Corporate Office)

Mission Statement

Tyler's Hope Foundation was established to advance research for a cure, discover effective treatments and to promote awareness and education of DYT1 Dystonia. 

​
​501c3    20-3733312



Contact Us

  • Tyler's Story
    • Progressional Diary
  • About Us
    • Centers of Excellence >
      • University of Florida's Norman Fixel Institute for Neurological Diseases
      • Duke Health
    • About Dystonia
    • Meet the Team
    • The Research
    • Our Leadership
    • Media Coverage
  • Events
    • Cajun Crawfish Boil
    • Think Tank
    • The Hope Weekend
    • Season of Hope 5K/15K
    • Webinars
  • Support Us
    • Shop
    • The Hope Brew Coffee
    • Planned Giving
    • Send checks
    • Amazon Smile
    • Giving Tuesday
  • Get Involved
    • Donate Now
    • Add a Signature
    • Volunteer Registration
    • Tyler's Hope Tuesdays
    • Social Media >
      • Facebook
      • Twitter
      • Instagram
  • Latest News
  • DIPR - Dystonia International Patient Registry
  • Blog