Tyler's Hope for a Dystonia Cure
  • Tyler's Story
    • Progressional Diary
  • About Us
    • Centers of Excellence >
      • University of Florida's Norman Fixel Institute for Neurological Diseases
      • Duke Health
    • About Dystonia
    • Meet the Team
    • The Research
    • Our Leadership
    • Media Coverage
  • Events
    • Cajun Crawfish Boil
    • Think Tank
    • The Hope Weekend
    • Season of Hope 5K/15K
    • Webinars
  • Support Us
    • Shop
    • The Hope Brew Coffee
    • Planned Giving
    • Send checks
    • Amazon Smile
    • Giving Tuesday
  • Get Involved
    • Donate Now
    • Add a Signature
    • Volunteer Registration
    • Tyler's Hope Tuesdays
    • Social Media >
      • Facebook
      • Twitter
      • Instagram
  • Latest News
  • DIPR - Dystonia International Patient Registry
  • Blog

The Blog

Periodical posts to update you on the most important topics concerning Tyler's Hope events, fundraisers,

​and dystonia awareness.

How Social Media Superstars Can Change the Face of Social Media

6/21/2017

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Nowadays, social media is everything. It is how someone expresses themselves, promotes businesses, and even becomes famous through many social media outlets. But why does being a social media superstar matter to charities? I'll tell you. 

The people who have a strong social media presence AND are highly involved in charities can have a great impact and use their fame for higher purposes. Social media is seen as the bestsellers mode of communication and to have a social media superstar publicly supporting your charity can bring many rewards. 

People are more likely to follow the same charity that their social media superstar follows. Think about it...when Kim Kardashian wears a certain outfit or promotes a particular brand, some of her followers immediately follow that brand or purchase outfits similar to hers. 

A better example is Matt Damon partnering with Stella Artois and Water.org to help  end the global water crisis (http://BuyALadyADrink.com) To check out the video: youtu.be/AEtJNMGa8fE


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The Motto Tyler's Hope Lives By and You Ought To Too

6/13/2017

0 Comments

 
Tyler's Hope has a distinct motto: Moving The Needle. It means we will are making a difference. As most know, Tyler's Hope Foundation was established to advance research for a cure, discover effective treatments and to promote awareness and education of DYT1 Dystonia. Everyone should live by the motto of "make a difference." 

One way to make a different is by donating time, money, and support for DYT1 Dystonia. The great Winston Churchill, a favorite of mine, has said many great quotes; two that stand out to me are: 
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Here at Tyler's Hope Foundation, the researchers depend upon donations to further advance their research to find a cure. We will never, never, never give up our hope to finding the cure for Dystonia. There is a cure, and it will be found with your support. 
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Taste of Gainesville

6/1/2017

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We are back...for Tyler's Hope 6th year at Taste of Gainesville that is! We are proud and excited to be a part of such a great event. This Sunday, prepare yourself for an iron chef challenge, plenty of food and drinks, and Dystonia awareness. While the event is not soley for promoting Dystonia, it is a great event to help spread the word of our non-profit and of many other great organizations and businesses. 
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Child Advocacy Center, Ronald McDonald House, Pace and Tyler's Hope are the four main charities that are raising awareness at the event. Tickets are $125 a piece but a majority of the proceeds go back into the charities. Click here to participate. 
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Location:
13301 US Hwy 441
Alachua, FL 32615
​
(Located inside The InterMed Group's Corporate Office)

Mission Statement

Tyler's Hope Foundation was established to advance research for a cure, discover effective treatments and to promote awareness and education of DYT1 Dystonia. 

​
​501c3    20-3733312



Contact Us

  • Tyler's Story
    • Progressional Diary
  • About Us
    • Centers of Excellence >
      • University of Florida's Norman Fixel Institute for Neurological Diseases
      • Duke Health
    • About Dystonia
    • Meet the Team
    • The Research
    • Our Leadership
    • Media Coverage
  • Events
    • Cajun Crawfish Boil
    • Think Tank
    • The Hope Weekend
    • Season of Hope 5K/15K
    • Webinars
  • Support Us
    • Shop
    • The Hope Brew Coffee
    • Planned Giving
    • Send checks
    • Amazon Smile
    • Giving Tuesday
  • Get Involved
    • Donate Now
    • Add a Signature
    • Volunteer Registration
    • Tyler's Hope Tuesdays
    • Social Media >
      • Facebook
      • Twitter
      • Instagram
  • Latest News
  • DIPR - Dystonia International Patient Registry
  • Blog