Tyler's Hope for a Dystonia Cure
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The Holiday Season

12/20/2017

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​Tyler, Samantha, and Luke have all of their birthdays in November December and January with the last one being Samantha’s 17th on January 29th. As usual the secret Pal has been there for each of them. Thank you for the caring and encouragement you show each of them, it makes a difference.
They all just finished exams and we are currently in Colorado for Christmas break. We feel very blessed to be able to take a vacation together like this as a family. The dystonia Samantha and Tyler battle every day can pose real challenges but especially when taking trips together across country. Both Tyler and Samantha have been able to get on the slopes through the National Center for Sports and Disabilities or NCSD. Tyler rated his experience in a chair on the slopes as a six on a scale from 1-5. Samantha only wanted to learn to ski by herself as if she has no disability and did a great job and improved each time however her turning to one side continues to be a challenge. It makes it fun to be able to really appreciate the things we tend to take for granted. Luke continued to learn the snowboard and with his energy and athleticism you cant get him down from the mountain.
We wish you a happy Hanukkah and a Merry Christmas!
May 2019 bring us new breakthroughs in the science to finding a cure and eliminating dystonia.
 
The Staabs
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Location:
13301 US Hwy 441
Alachua, FL 32615
​
(Located inside The InterMed Group's Corporate Office)

Mission Statement

Tyler's Hope Foundation was established to advance research for a cure, discover effective treatments and to promote awareness and education of DYT1 Dystonia. 

​
​501c3    20-3733312



Contact Us

  • Tyler's Story
    • Progressional Diary
  • About Us
    • Centers of Excellence >
      • University of Florida's Norman Fixel Institute for Neurological Diseases
      • Duke Health
    • About Dystonia
    • Meet the Team
    • The Research
    • Our Leadership
    • Media Coverage
  • Events
    • Center of Excellence at Duke Health Ribbon Cutting
    • Cajun Crawfish Boil
    • Think Tank
    • The Hope Weekend
    • Season of Hope 5K/15K
    • Webinars
  • Support Us
    • Shop
    • The Hope Brew Coffee
    • Planned Giving
    • Send checks
    • Amazon Smile
    • Giving Tuesday
  • Get Involved
    • Donate Now
    • Add a Signature
    • Volunteer Registration
    • Tyler's Hope Tuesdays
    • Social Media >
      • Facebook
      • Twitter
      • Instagram
  • Latest News
  • DIPR - Dystonia International Patient Registry
  • Blog