Tyler's Hope for a Dystonia Cure
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      • University of Florida's Norman Fixel Institute for Neurological Diseases
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Promotion of a Superstar Dystonia Adversary

5/4/2017

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Mary Staab or Mom as I know her, went the distance and laughed at Alzheimer's challenges. She did battle with that disease for over ten years, and never lost her sense of grace, gentle kindness, and compassion.  Mom was a passionate supporter and driver of our cause both financially and emotionally. Mom was very sweet all of the time but was clearly a strong woman that you did not want to tangle with and taught us to stick up for what is right by standing up to the "playground bullies" like Dystonia. She loved her grandkids very much and wanted us to do anything we could to cure dystonia. She called it quits on her time, and left us literally minutes after making sure that she saw each of her children and her sister Fran (and Larry) for one-on-ones. Her legacy in tact, the timing was nothing short of a miracle.

At 11:11 a.m. yesterday, we said goodbye to the most powerful and loving influence in our lives, and now have the responsibility to be kinder, try harder, think more creatively, and love those that need it most in her honor.  I have a thousand stories to tell about both of my parents and I am comforted by the undeniable sense of humor, compassion, and fearlessness that they used everyday and that I see reflected in my siblings.  

Anyone that doubts the hand of God after experiencing the events of the last two days with her is simply not paying attention.
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Location:
13301 US Hwy 441
Alachua, FL 32615
​
(Located inside The InterMed Group's Corporate Office)

Mission Statement

Tyler's Hope Foundation was established to advance research for a cure, discover effective treatments and to promote awareness and education of DYT1 Dystonia. 

​
​501c3    20-3733312



Contact Us

  • Tyler's Story
    • Progressional Diary
  • About Us
    • Centers of Excellence >
      • University of Florida's Norman Fixel Institute for Neurological Diseases
      • Duke Health
    • About Dystonia
    • Meet the Team
    • The Research
    • Our Leadership
    • Media Coverage
  • Events
    • Center of Excellence at Duke Health Ribbon Cutting
    • Cajun Crawfish Boil
    • Think Tank
    • The Hope Weekend
    • Season of Hope 5K/15K
    • Webinars
  • Support Us
    • Shop
    • The Hope Brew Coffee
    • Planned Giving
    • Send checks
    • Amazon Smile
    • Giving Tuesday
  • Get Involved
    • Donate Now
    • Add a Signature
    • Volunteer Registration
    • Tyler's Hope Tuesdays
    • Social Media >
      • Facebook
      • Twitter
      • Instagram
  • Latest News
  • DIPR - Dystonia International Patient Registry
  • Blog