Tyler's Hope
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Merry Christmas!

12/25/2015

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Merry Christmas! 

The secret pal has shown up a few times again lately. First on their birthdays and now again with Christmas gifts for the kids. I must confess that after many years I finally found out definitively who the Secret Pal/pals have been. I am sad to know because I really didn't know for sure and it was very mysterious. I am up at all hours of the day and never caught the ladies leaving the presents. The kids still don't know who it is and I'm not telling them unless the Pal wants me to? 

Tyler has been lying on the couch the last few days recovering from a surgery he had to close back up his stomach after removing his feeding tube. He really wanted to get rid of the feeding tube so he did. The recovery is painful for a few days and even more so when your dystonia is always pulling on the muscles that are trying to heal. The next few weeks we will be watching to make sure Tyler doesn't develop any infections as this area is prone to infections. Tyler is graduating high school this year...
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Location:
13301 US Hwy 441, Alachua, FL 32615

Mission Statement

Tyler's Hope Foundation was established to advance research for a cure, discover effective treatments and to promote awareness and education of DYT1 Dystonia. 

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​501c3    20-3733312


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  • Home
    • 2019 Board of Directors
  • About Dystonia
  • Tyler's Story
  • Donate
    • Planned Giving
  • Get Involved
    • Add a Signature
    • Volunteer Registration
    • Tyler's Hope Tuesdays
  • Events/ Registration
    • Cajun Crawfish Boil
    • The Hope
    • Season for Hope
    • 2018 Think Tank
  • The Research
  • Progressional Diary
    • Blog
  • DIP Registry
  • Media Coverage
  • Merchandise
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