Tyler, Samantha, and Luke have all of their birthdays in November December and January with the last one being Samantha’s 17th on January 29th. As usual the secret Pal has been there for each of them. Thank you for the caring and encouragement you show each of them, it makes a difference.
They all just finished exams and we are currently in Colorado for Christmas break. We feel very blessed to be able to take a vacation together like this as a family. The dystonia Samantha and Tyler battle every day can pose real challenges but especially when taking trips together across country. Both Tyler and Samantha have been able to get on the slopes through the National Center for Sports and Disabilities or NCSD. Tyler rated his experience in a chair on the slopes as a six on a scale from 1-5. Samantha only wanted to learn to ski by herself as if she has no disability and did a great job and improved each time however her turning to one side continues to be a challenge. It makes it fun to be able to really appreciate the things we tend to take for granted. Luke continued to learn the snowboard and with his energy and athleticism you cant get him down from the mountain.
We wish you a happy Hanukkah and a Merry Christmas!
May 2019 bring us new breakthroughs in the science to finding a cure and eliminating dystonia.